Thank you for thinking of and reaching out to Now I Lay Me Down to Sleep. Unfortunately, services for terminally ill older children are out of the scope of NILMDTS, as our mission is to provide remembrance photography to parents experiencing the loss of an infant.

Here are a couple of organizations that might be able to provide photography:

The American Child Photographers Guild (photos for parents of critically ill children):
http://footprintsphotography.blogspot.com/2011/03/american-child-photographers-charity.html 

Family Images for Lasting Memories (giving professional family portraits to those with a life-limiting illness and their families): http://www.thefilmproject.net/